is officially Off Treatment.
OT, as it's referred to on the rhabdo list I belong to. The only acronym I like better is NED--No Evidence of Disease. Jacob attained that status in April, after radiation killed the tumor. And he's still NED today, according to his last treatment scans taken yesterday.
Now I have a page in front of me that is our roadmap for the next 10 years.
Year 1: MRI and chest CT every 3 months
Year 2-3: MRI and chest CT every 4 months
Year 4-5: MRI and chest CT every 6 months
Through Year 10: annual visit for blood draws and exam
There are plenty of secondary things we'll be watching for, side effects of the treatment rather than the cancer. These include delayed sexual maturity (I'm sure Jake will be delighted that I told you that), bone damage in the radiation field (including the teeth), and possible secondary cancers years later (such as osteosarcoma from the radiation and leukemia from the Cytoxan.)
But for now, I actually got Jake to admit that he was excited today. That may have been just a ploy to get me to buy him clothes, but sue me. My 12-year-old is OT and NED. And we are all H-A-P-P-Y.